#RARE-DISEASES

List of the best Telegram channels tagged with #RARE-DISEASES.

12Channels
7KCombined reach
90%Russian

The #rare-diseases tag brings together 12 Telegram channels with a combined audience of 6,976 subscribers. Content is primarily in Russian (90%) and Spanish (10%). Channels are grouped under Health, Charity, Social. Channels tagged #rare-diseases frequently also cover #patient-support (33%), #health (25%), #health-education (17%).

Zinatomia

Zinatomia is a team of zine makers, we create zines and merch for various fandoms, news about which we publish here Admins: @Sonyanegr @StaasTeea

552
General
rare_diseases_ru

Official news channel about rare diseases. Our contacts: https://vk.com/rarediseasesru https://ok.ru/rarediseasesWww.rare-diseases.ru

817
General
Всероссийский союз пациентов (ВСП)

VSP channel. News, projects, programs, technologies, teaching materials and much more to help NGOs and patients

2k
General
domorphans

Channel ANO "Center for Expert Assistance "House of Rare"

827
General
Фонд Люди-маяки

Charitable foundation to help children and adults with rare and life-threatening diseases. ❤️Help https://ludimayaki.ru/

586
General
#РедкиеМетки

Independent orphan news about rare genetics and medical innovations. Production: "Rare Agency"

601
General
Помощь редким

Channel of the “Help for Rare Diseases” platform, uniting the professional community around rare diseases to exchange experiences and access to up-to-date materials https://rare-aid.com/

218
General
naerez

National Association of Rare Disease Experts https://naerez.ru/

771
General
редкие болезни cf /🌱

у вас есть редкая болезнь и вы хотите рассказать о ней? добро пожаловать, тут вы можете написать все про них! анон предложка: @predloshka_redkihbot

6
General
Bali👩‍🔬 / 🔬Medicina Curiosa 🤓

Welcome to this channel. 🤗 In this channel I intend to talk about very interesting topics about Medicine, including rare diseases and much more 🤩

897
General